So all of this is also on www.teamfums.org but I wanted to share it here as well
There are a few things you can do right now to support TeamFUMS:
- Bookmark this page www.teamfums.org and check back regularly for updates, news, and ways you can contribute.
- Click HERE. This will take you to our MS Walk page where you can Join TeamFUMS and register to walk and/or fundraise. You can also make a donation to our MS Walk team and 100% of your donation goes directly to the National MS Society. The page also shares my story of being diagnosed with MS and what I want to accomplish with TeamFUMS.
- Follow us on Twitter @TeamFUMS and check there regularly for updates, news, and fun.
- Like us on Facebook and check there for even more updates, news, and fun
- SPREAD THE WORD ABOUT Team FUMS - share all these links with everybody in your network and share anything we post regularly. The more people that are aware the more we can fight and scream FUMS.
- Leave a comment on the blog, even if its just a "hi" I like to know who is reading the page.
And here is my story:
To My Wonderfully Supportive and Amazing Family
(I'm the bearded guy and yes we are that funny)
So this is a big reveal for some of you since you might be on a goat hunt, others of you have known me for longer than I can remember, and some of you are just now discovering who I am and why I’m fighting to make a difference in the fight against MS. I created TeamFUMS to not only raise money for the MS Walk but to create an online and local voice for advocacy, information, and support in the battle that is with Multiple Sclerosis. It is for these reasons that I’m sharing my story with everybody.
So the story begins like this:
It starts with a headache.
I was 20 years old and had just restarted college. As is the case with many a 20 year old, I was not treating my body kindly. It was time of late nights filled debauchery and youthful vigor, a time when a man feels invincible, a time when one fills his mind with hubris, and a time one sees all the excitement and dreams head of them. It was the time a growing adult should relish, when the world was unrestricted and you are invincible, it is the closest to being a god anyone reaches. The world should be unending, the possibilities intoxicating, and the future is forever.
BUT then there was a headache.
The headache was constant and gave me blurred vision and indescribable odd blank and fuzzy spots. So of course I figured it was just a bad hangover, lack of sleep, or possibly I fell down and couldn't remember it (see debauchery). So I treated it with plenty of Goody’s Headache Powder which would give me 20-30 minutes of relief, but after two days I was worried. So I went to one of the walk-in clinics you go if you come down with a mild cold and don’t really have a doctor. The doctor checked me out gave me a sample pack of migraine medication and gave me a very specific direction: “If you don’t feel better in 24 hours call me back immediately.” So 24 hours passed, nothing got better and I made that phone call. As one looks back over their life its funny how the smallest moments have the greatest impact. The doctor told me to stop the meds because he was getting me into a neurologist, and next couple days changed everything.
Before I get to that I need to step back and give you more information about my family. My maternal Aunt, Loine Marie Marofske (Riggs), was diagnosed with MS when I was just a few years old. My earliest memories of my Aunt is her struggling to walk with a cane at my grandparent’s house. From there most of my memories are of her in a wheelchair and eventually of her being bed ridden. In time, a couple of years after I was diagnosed, she passed away. So it’s an understatement to say my family was very aware of Multiple Sclerosis. I grew up watching what it can do to a daughter, sister, wife, mother, and aunt— MS was no stranger in the life of my family. In time I’ll be sharing more about my Aunt Loine and the connection we share that I wish we didn't.
As we return to my story, the appointment with the Neurologist was scheduled within 24 hours. I barely remember the appointment but I do remember how it ended. My mother took me to the appointment and after the exam we asked her what could be causing this and the next few seconds is one of those time-froze memories we wish we never had but can never forget.
She said “Multiple Sclerosis.” Time froze.
Words escape what two words, two little letters can do to your life, two horrible letters, two flippity farking WORDS, two letters to haunt me for the rest of my life, two words I can’t let defeat me, two letters that I will fight until I’m dead, two words that I refuse to defeat me, two tiny letters that cause me to scream FU MS!
So next came the MRI (later I’ll write something about having multiple MRIs), the spinal tap (the sound as the needle entered my back), and the confirmation. I had MS and I would have MS the rest of my life, or until a cure would be discovered.
So time moved on, I moved to different states, went on different MS treatments, had a couple of relapses, a couple rounds of crazy steroids, but sadly I just kept trying to ignore and forget about it. So today here I am in Michigan and my legs have started to fail me, I can’t run, walk a straight line, or do any serious labor for very long. It was time to stop hiding from the bully that is MS, it was time to start fighting. And fight I will. I hope you can help the fight with donations to the MS Society, donations to support TeamFUMS, and your love, support, and help spreading the word. I need your help if the world has a chance to beat MS. Help me however you can.